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Bryony Parsons

My name is Bryony Parsons and I live with a rare chromosome disorder known as 22q.11 Deletion Syndrome, caused by a missing piece of the 22nd Chromosome. It can affect any part of the body and cause mental health problems, as well as learning difficulties. I have had two open heart surgeries and a scoliosis repair on my back. The one thing that has helped me deal with this is creative writing, which has become my passion. Over the years, I’ve discovered that not many people have heard of my condition, including doctors, so I have made it my mission to raise awareness. My blog will mainly be around raising awareness about my syndrome, as well as how it’s affected my family. I struggle when it comes to expressing myself, so I turn my thoughts and feelings into poems. I am also working on a fantasy novel, which I am hoping will be finished soon.

Posts by Bryony Parsons

a short-haired dog stares at the camera

It was love at first sight.

. It was love at first sight, We call our dog Jeff, He isn't very bright, But he's still our family pet. He isn't very brave, and runs when the hoover is out, He likes to misbehave, When we go and walk about, His eyes are chocolate brown, His fur is a sandy blonde colour, He acts like a silly clown, And ...

She tried her hand

You try your hardest to keep a peaceful lifestyle, but sometimes you try too hard. She tried her hand at most things, but drew the line at honesty, She tugs at the heart strings, and tries to keep her sanity. She fakes a smile, and pretends to be happy, To keep a peaceful lifestyle, despite feeling low and ...

Photo of Bryony beside the riverside

My childhood

My childhood seems to belong to another world, Where fairies and demons were once thought to be true, And nagging adults got on our nerves, Picking our noses seemed to make adults go ‘Eww’. Playing in the streets and games like kiss chase, Used to be the highlight of our day, Learning to make more mates, While ...

Bryony Parsons