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Bryony Parsons

My name is Bryony Parsons and I live with a rare chromosome disorder known as 22q.11 Deletion Syndrome, caused by a missing piece of the 22nd Chromosome. It can affect any part of the body and cause mental health problems, as well as learning difficulties. I have had two open heart surgeries and a scoliosis repair on my back. The one thing that has helped me deal with this is creative writing, which has become my passion. Over the years, I’ve discovered that not many people have heard of my condition, including doctors, so I have made it my mission to raise awareness. My blog will mainly be around raising awareness about my syndrome, as well as how it’s affected my family. I struggle when it comes to expressing myself, so I turn my thoughts and feelings into poems. I am also working on a fantasy novel, which I am hoping will be finished soon.

Posts by Bryony Parsons

Changes

I apologise for not writing a poem for a long time. I've recently been poorly, but I think I have my writing muse back. I hope you all enjoy this poem. I remember when I couldn't socialise, A few years down the line, Things have changed, It now takes a lot too keep me ...

black and white image of two hands holding

It’s a conversation

It's a conversation, I just can't have tonight, despite your desperation, i am ready to take flight. I look at you, you look at me, I can see a storm waiting to brew, as you do nothing but insult me. You won't admit when you are wrong, It's always all about you, you make me feel like I don't belong, If ...

Photograph of a dog

It was hard to say goodbye

Trigger warnings: Death. Not my best poem, but these furry best friends do know how to leave a hole in our hearts. Rest in Peace, Morgan! You were my furry best friend, We had a strong bond, you and I, We were like two peas in a pod, So it was very hard to say ...

Has spring finally arrived?

Has spring finally arrived? The snow is melting, The sun is shining, and the birds are nesting. Has spring finally arrived? People are starting to smile, Flowers are beginning to thrive, Children are starting to play outside. Has spring finally arrived? Farmers are lambing, Dark nights are becoming lighter, People are mowing their lawns, Has Spring finally arrived? Days are becoming dryer, Valentines and ...

As my name was called

Note: I have to have micro-suction done in my ears every few weeks, as I have a perforated eardrum. This means they get blocked easily and I always dread going to the appointments. I was sat in the waiting room, with my mum and a cup of brew, in a place I like ...

You Feel

Note: Do you suffer from Anxiety? I do. I struggle with these symptoms and sometimes it takes a while to get over them, as anything can set off an anxiety attack. But please don't worry, you are not alone. You feel your body freeze, You feel your mouth go dry, You feel like ...

red heart with the words 22q deletion syndrome

I am the one with 22q.11 Deletion Syndrome.

I am the one with 22q.11 Deletion Syndrome, I am the one with a heart condition, I am the one who struggles to hear, I am the one with just one wish, I wish I could avoid the hospital appointments, I wish I could stop my mother from worrying, I wish there was a life with ...

What is a New Year to you?

A new year is here, What is a new yea to you? A new year is to face my fears, It's one step closer to the future, What is a new year to you? A new year is a new you, It's an opportunity to try something new, It gives you the chance to start a new ...

Bright spot in storm clouds

This storm…

Do you ever feel like you're all alone? I do. Isolation should be stopped. No one likes to be alone. This storm... The howling of the wind, The heavy rain fall, The rumble of thunder, The combination of them all, The storm makes darkness appear, You see no light at the end of the tunnel, You feel like ...

Oh Christ, it’s Christmas Again!

Thought I'd write a little poem for Christmas. Merry Christmas everyone! C is for Christ, it's Christmas again H is for Hurry, time is running out I is for imagination, what gift can i get them? S is for socialising, and shopping till you drop T is for tree, putting up the Christmas decorations is ...

a short-haired dog stares at the camera

It was love at first sight.

. It was love at first sight, We call our dog Jeff, He isn't very bright, But he's still our family pet. He isn't very brave, and runs when the hoover is out, He likes to misbehave, When we go and walk about, His eyes are chocolate brown, His fur is a sandy blonde colour, He acts like a silly clown, And ...

She tried her hand

You try your hardest to keep a peaceful lifestyle, but sometimes you try too hard. She tried her hand at most things, but drew the line at honesty, She tugs at the heart strings, and tries to keep her sanity. She fakes a smile, and pretends to be happy, To keep a peaceful lifestyle, despite feeling low and ...

Photo of Bryony beside the riverside

My childhood

My childhood seems to belong to another world, Where fairies and demons were once thought to be true, And nagging adults got on our nerves, Picking our noses seemed to make adults go ‘Eww’. Playing in the streets and games like kiss chase, Used to be the highlight of our day, Learning to make more mates, While ...

Bryony Parsons