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Blog - Bryony Parsons

I am the one with 22q.11 Deletion Syndrome.

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I am the one with 22q.11 Deletion Syndrome,
I am the one with a heart condition,
I am the one who struggles to hear,
I am the one with just one wish,

I wish I could avoid the hospital appointments,
I wish I could stop my mother from worrying,
I wish there was a life with more treatments,

I am the one who never stops wishing,
I am the one who struggles with learning difficulties,
I am the one who struggles with anxiety,
I am the one who has ambition.

I am who I am,
who I am is enough,
I face my fears instead of burying my head in the sand,
I am the one who never gives up.

I have also made a video to raise awareness for people with 22q.11 Deletion syndrome!

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Carole wilsonNanmaBryony ParsonsJacquiMelanie Parsons Recent comment authors
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Melanie Parsons
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Melanie Parsons

You are the one who is brave and clever and never gives up!
We love you! Mum and Ken x

Jacqui
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Jacqui

Well you just raised my awareness cos now I know a bit more than I did before cos I knew ‘nothing’!!
Love the song too!!

Nanma
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Nanma

You have done that beautifully

Bryony. So proud of you. I’m sure it will help lots of people with 22q. Keep up your good
Work xxx

Carole wilson
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Carole wilson

Raised my awareness I never heard of it.You are inspiring woman.thank you .
Liked music