My name is Bryony Parsons and I live with a rare chromosome disorder known as 22q.11 Deletion Syndrome, caused by a missing piece of the 22nd Chromosome. It can affect any part of the body and cause mental health problems, as well as learning difficulties. I have had two open heart surgeries and a scoliosis repair on my back. The one thing that has helped me deal with this is creative writing, which has become my passion. Over the years, I’ve discovered that not many people have heard of my condition, including doctors, so I have made it my mission to raise awareness. My blog will mainly be around raising awareness about my syndrome, as well as how it’s affected my family. I struggle when it comes to expressing myself, so I turn my thoughts and feelings into poems. I am also working on a fantasy novel, which I am hoping will be finished soon.
Posts by Bryony Parsons
Dementia
March 16, 2020You may have dementia, But don’t let it define who you really are, You are still my nanma, You’ve always been my shining star. You may have dementia, But you are independent and strong, You often enjoy a sing song, And planting poinsettia’s. You may have dementia, But you’re always smiling, Telling tales from the past, And having a laugh. You may ...
The first frost has fallen
October 6, 2019The first frost has fallen, The leaves have turned golden, Days are becoming shorter, Squirrels are gathering their nuts, Winter clothes are back in the wardrobe, Hats and gloves are ready to be worn, Nights are becoming colder, Birds begin to fly south, Windy, wet weather seems to be constant, Wet leaves make a slippery ground, Hot chocolates become a ...
It’s easy to forgive.
September 18, 2019It is easy to forgive, Hard to forget, You had just disappeared, Without giving it a thought. You left me in the dark, When I tried to reach out to you, I was left with a broken heart, As you chose to decline my views. We were a package deal, No one said our deal expires, Nothing you said seems ...
Stormy skies
August 20, 2019Stormy skies, Fallen down trees, Where is the light? No chance of sleep. Rumbling all around, Followed by lightening, The pressure of feeling overwhelmed, is slightly worrying. When the storms begin to fade, The light begins to appear, and the pressure gives way, to help us see that the light was always here, Once we get out of the stormy circle, Our minds ...
I can call it home
June 19, 2019I can call it home Tiled floors, Cold upon my feet, as I began to explore, Inside these four walls. It was dark and damp, dirty and smelly, it was hard to see, that this was once a home. The cobwebs were tidied up, Dead flies were seen, The walls are falling apart, The furniture was left unclean. There is a lot to ...
Pick, Pick & Pick
May 6, 2019Note: I've had what many would call a habit. This habit has turned into self harm. I've been trying to give up, but it's not always easy. I hope this poem makes people realise that you can't 'just give up.' It won't happen over night. You have to keep fighting ...
Ticking time bomb
January 10, 2019I am a ticking time bomb, Waiting to go off, My mind never stops, As life wanders on. I question, "What If?" Paranoia starts to show, My head starts to spin, I fear the unknown. I keep getting knocked down, But that doesn't stop me, From fighting for what I want, To be able to achieve my dreams.
She tried her hand
December 3, 2018You try your hardest to keep a peaceful lifestyle, but sometimes you try too hard. She tried her hand at most things, but drew the line at honesty, She tugs at the heart strings, and tries to keep her sanity. She fakes a smile, and pretends to be happy, To keep a peaceful lifestyle, despite feeling low and ...
My childhood
November 26, 2018My childhood seems to belong to another world, Where fairies and demons were once thought to be true, And nagging adults got on our nerves, Picking our noses seemed to make adults go ‘Eww’. Playing in the streets and games like kiss chase, Used to be the highlight of our day, Learning to make more mates, While ...
